You are here: Home » Human Growth Hormone and Creutzfeldt-Jacob Disease » General Information (HGH/CJD) » Why should people treated with hGH know about CJD?
Why should people treated with hGH know about CJD? Some parents did not tell their child about the possible risk of CJD. CJD is very painful to talk about, but these children are now adults. Some have learned about the risk of CJD from newspaper stories. Others heard about it when they tried to give blood. This is a very upsetting way to learn about risk. Those who were not told before are often angry when they hear of it outside the family. Also, if parents are no longer available to receive these mailings, their adult children may have no access to important new information. If you are the parent of someone who got NHPP hGH and who is not receiving these mailings, please share your child's address so we can send this information. We are glad to answer any questions that you or your child may have.
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